Let’s Thrive

Our mission is to connect the Pyruvate Kinase Deficiency community through support, increased social awareness, and advocacy.

Thrive with Pyruvate Kinase Deficiency Organization was founded on principles of resourcefulness, transparency, and connectedness. Content for this site is curated from pharma, research, healthcare, and nonprofit organizations to help you and your family manage PK deficiency. Please join us in building a PKD resource hub that supports the diverse perspectives of the community. Additional content may be considered by emailing info@thrivewithpkd.org with a link to the resource.

We empower people with PKD to live a more satisfied life.

Celebrate 60 years!

Thrive with Pyruvate Kinase Deficiency Organization is pleased to announce a family conference November 6-7, 2022 for people and families affected by PK deficiency, in Orlando, FL. Families are welcome to stay an extra day (Nov 8) to visit Universal Studios, park tickets provided gratis.

The goal is for the community to celebrate 60 years of living with PKD. The conference and lodging will be free with travel assistance provided for those needing it.

Please contact us for more information at: info@thrivewithpkd.org


Please consider donating to help people and families with PK deficiency travel to this year’s 60th Year Celebration Conference. Every dollar helps!

International PKD Day

International PK Deficiency Day Awareness is December 1st, 2022. This is the logo the PKD community voted for to represent #pyruvatekinasedeficiency around the world. Click below to learn more.

We’re on YouTube

Check out our YouTube channel, which hosts a collection of relevant videos about PKD and the people living with it.

With the world of online shopping, Amazon is doing their part to give back to organizations. Through Amazon Smile, you can donate at no cost to you. The video below contains step-by-step instructions on how to set up a donation to Thrive with Pyruvate Kinase Deficiency Organization.