Thrive’s Upcoming Events
Thrive with Pyruvate Kinase Deficiency Facebook Group for some future virtual events online!
Know PK Deficiency Patient Webinar
Dr. Kendra J. Bjoraker, Ph.D., L.P. will present Living with a Chronic Condition, and John, a person living with PK deficiency, tells his story.
Janaury 25th, 2023 7:00 (EST)
FDA’s Rare Disease Day
FDA’s Rare Disease Day is quickly approaching on February 27, 2023 FDA has designed an interactive and engaging agenda with patients and their families and caregivers in mind. The goal is to give patients as well as their families and caregivers the opportunity to express perspectives on the future of rare disease medical product development and ongoing engagement with the FDA. There will be multiple opportunities to ask questions and provide comments during the event.
February 27, 2023
Rare Disease Day
Share your Colours and help support Rare Disease Day! Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
February 28, 2023
International PKD Day
The Pyruvate Kinase Deficiency Community invites everyone from around the world to participate in celebrating International PK Deficiency Day December 1, 2023. Our goal is to raise awareness of the needs and experiences of people living with PK Deficiency, their carers, and family members.
December 1st, 2023
More updates soon!