Start looking for answers here.
We understand how frustrating it can be to spend hours searching for answers. Pyruvate Kinase Deficiency is already rare enough! Here’s the spot where you can start your journey to answering your questions.
Note: Information on Thalassemia and Sickle Cell Anemia may be included because these diseases are similar hemolytic anemias.
Thrive is both working on a list with the dream of connecting patients to PKD experts and seeking your help to grow this resource!
The video page has both personal stories and educational resources.
Patient and caregiver’s relationship with their hematologist can define the mood of this chronic disease. A new White Paper reveals how over 275 people affected by PK deficiency from 11 countries perceive their interactions with their doctor. Now in Spanish, French, German, Italian and Arabic.
Pyruvate Kinase Deficiency 101
Diagnosis & Genetics
What’s a Genome? / NIH
Caregivers & General Care
Pediatrics / Babies & Kids
Agios / Quick Reference Guide for Teachers and Parents (2021)
NERGN / IFSPs, IEPs, and 504 Overview
The scholarly articles page includes scientific research and studies.
Are we missing anything?
If you have a great PKD resource to add to our collection, please contact us at email@example.com with the title and a public link!