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We understand how frustrating it can be to spend hours searching for answers. Pyruvate Kinase Deficiency is already rare enough! Here’s the spot where you can start your journey to answering your questions.
Disclaimer: Thrive with Pyruvate Kinase Deficiency Organization did not produce any of the information listed below. Please contact the supporting authors, company, or source for questions and comments.
The video page has both personal stories and educational resources.
Pyruvate Kinase Deficiency 101
Diagnosis & Genetics
Caregivers & General Care
Pediatrics / Babies & Kids
Agios / Quick Reference Guide for Teachers and Parents (2021)
NERGN / IFSPs, IEPs, and 504 Overview
The scholarly articles page includes scientific research and studies.
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