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Patient and caregiver’s relationship with their hematologist can define the mood of this chronic disease. A White Paper reveals how over 275 people affected by PK deficiency from 11 countries perceive their interactions with their doctor. Now in Spanish, French, German, Italian and Arabic.
Pyruvate Kinase Deficiency 101
Diagnosis & Genetics
What’s a Genome? / NIH
Caregivers & General Care
Monitoring PK deficiency (2021)
Pediatrics / Babies & Kids
Agios / Quick Reference Guide for Teachers and Parents (2021)
NERGN / IFSPs, IEPs, and 504 Overview
The scholarly articles page includes scientific research and studies.