Rare Disease Nonprofits

Nonprofit & Individual Websites

The following websites are nonprofit organizations or those dedicated to providing information on PK Deficiency and living with rare disease.

El Petit Bernat


EveryLife Foundation / For Rare Diseases

Global Genes / Allies in Rare Disease

Metabolic Support UK

National Organization for Rare Diseases (NORD)

Pyruvate Kinase Deficiency | Understanding and Living with PKD

Pyruvate Kinase Deficiency Foundation

Rare Revolution Magazine

Thalassaemia International Federation

The Mighty

Thrive with Pyruvate Kinase Deficiency Organization