Connect & Learn Online

Social Spaces

Thrive with Pyruvate Kinase Deficiency Facebook Group

People with Pyruvate Kinase Deficiency Facebook Group

The Mighty / Community for people facing health challenges


Websites

All websites below have social media pages! See website for details.

El Petit Bernat

EURORDIS / Rare Diseases Europe

EveryLife Foundation / For Rare Diseases

Global Genes / Allies in Rare Disease

Haematologica Journal

Know PK Deficiency

Metabolic Support UK

National Organization for Rare Diseases (NORD)

Pyruvate Kinase Deficiency Foundation

Pyruvate Kinase Deficiency Community-Run Website

Rare Revolution Magazine

Rocket Pharma / Patients + Community: Pyruvate Kinase Deficiency Resources

Thalassaemia International Federation


News Articles

Mitapivat Granted Priority Review By The FDA for Pyruvate Kinase (PK) Deficiency / TIF 2021

Heart Transplant Recipients Celebrate W’chester Medical Milestone / The Examiner 2017