Social Spaces
Thrive with Pyruvate Kinase Deficiency Facebook Group
People with Pyruvate Kinase Deficiency Facebook Group
The Mighty / Community for people facing health challenges
Websites
All websites below have social media pages! See website for details.
EURORDIS / Rare Diseases Europe
EveryLife Foundation / For Rare Diseases
Global Genes / Allies in Rare Disease
Haematologica Journal
National Organization for Rare Diseases (NORD)
Pyruvate Kinase Deficiency Foundation
Pyruvate Kinase Deficiency Community-Run Website
Rocket Pharma / Patients + Community: Pyruvate Kinase Deficiency Resources
Thalassaemia International Federation
News Articles
Mitapivat Granted Priority Review By The FDA for Pyruvate Kinase (PK) Deficiency / TIF 2021
Heart Transplant Recipients Celebrate W’chester Medical Milestone / The Examiner 2017