Patient Assistance & Treatment Resources

Disclaimer: Thrive with Pyruvate Kinase Deficiency Organization did not produce any of the information listed below. Please contact the supporting authors, company, or source for questions and comments.

Patient Assistance

National Institute of Health Clinical Trials Database Search / ClinicalTrials.gov

Free genetic testing through Anemia ID

myAgios Patient Support Services

Novartis Jadenu (medication) Assistance Program

Medicaid & CHIP Health Insurance

Social Security Disability Income Application

Social Security Disability Evaluation for Hematological Disorders in Adults

Treatment Resources

Lentiviral gene therapy for pyruvate kinase deficiency (video) (2021)

Genotype-Response Correlation In Drive PK, A Phase 2 Study Of Mitapivat (AG-348) In Patients With Pyruvate Kinase Deficiency (2019)

Splenectomy and emerging novel treatments in rare inherited hemolytic anemias (2019)

Mental Healthcare

Find a Therapist / Psychology Today

10 Young People Changing Their Communities For Mental Health / Mental Health America


Are we missing anything?

If you have a great PKD resource to add to our collection, please contact us at twpkdnonprofit@gmail.com with the title and a public link!