People & Connections

Connecting with People who have PKD

Many people and families that cope with a rare disease often feel alone and isolated even when they have excellent care providers and support from their extended family. Meeting or hearing from someone else with PK deficiency can be a life altering event. We invite you to hear the stories of people living with PKD and to join our social media community. We can’t wait to meet you!

Molly describes what it’s like to live with PK Deficiency
Kelsi talks about the symptoms of PK deficiency
Maaike explains being a mother with PK deficiency
Nathan grew up with PK Deficiency in a rural area
Robyn lives in Australia with PK deficiency