Let’s Thrive

Our mission is to connect the Pyruvate Kinase Deficiency community through support, increased social awareness, and advocacy.

Thrive with Pyruvate Kinase Deficiency Organization was founded on principles of resourcefulness, transparency, and connectedness. Content for this site is curated from pharma, research, healthcare, and nonprofit organizations to help you and your family manage PK deficiency. Please join us in building a PKD resource hub that supports the diverse perspectives of the community. Additional content may be considered by emailing info@thrivewithpkd.org with a link to the resource.

We empower people with PKD to live a more satisfied life.

Nutrition Guide for Patients with Thalassemia & PKD

A comprehensive publication on nutrition in two inherited hemolytic anemias; thalassemia and PK deficiency, aimed at offering a critical review of existing knowledge, benefiting both hematologists and dietitians in managing people with these conditions.

Nutrition-Guidelines-for-Patients-with-Thalassemia-PKDDownload

We’re on YouTube

Check out our YouTube channel, which hosts a collection of relevant videos about PKD and the people living with it.

All Things Pyruvate Kinase Deficiency

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Are you a part of the rare disease community? Join Global Genes' Rare Advocacy Summit in San Diego or online for a fantastic opportunity to learn about the latest rare disease innovations and advocacy strategies to accelerate change. Don't miss #aweekinrare! It's Apheresis Awareness Day, and we’re here to show our support for this life-saving procedure. 💙 Share this post to show your solidarity with those in the apheresis community. 🤝 #ApheresisAwarenessDay #Apheresis #BloodDonation #GiveBack The #pyruvatekinase enzyme is involved in the key metabolic pathway of glycolysis--or energy production. People with decreased amounts of the PK enzyme have less energy production, & their red blood cells break causing fatigue & iron overload.

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