Thrive’s Upcoming Events

Thrive with Pyruvate Kinase Deficiency Facebook Group for some future virtual events online!

Other Organizations

2022 Living RARE Living Stronger

2022 Living Rare, Living Stronger Patient and Family Forum Featuring the Rare Impact Awards

Cleveland, OH June 26th, 2022

Live or in person

Register Here

Therapeutic Approaches to Rare Anemias

RAIN educational members meeting which will focus on therapeutic approaches to improve red blood cell function. The meeting will be open to all RAIN members and network.

Please RSVP to if you are able to attend.

July 12, 2022

8:30 Am EST

Zoom Link

RARE Patient Advocacy Summit

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies. 

September 12-15, 2022

Town & Country Hotel, 500 Hotel Cir N, San Diego, CA 92108

More Info

RARE Health Equity Summit

The RARE Health Equity Summit was developed in order to gain a better understanding of persistent gaps in diagnostic challenges for underserved/underrepresented patient communities and align next steps on how to address health inequities of the rare disease community.

November 8, 2022- November 12, 2022

Atlanta, Georgia, United States of America

More Info

NORD Rare Summit 2022

NORD is putting on the most impactful multi-stakeholder gathering of the rare diseases community in the country. Each year, more than 900 participants gather to share the latest updates on rare disease diagnosis, genetics and genomics, drug development, patient engagement, rare disease research, FDA oversight and market accessibility of orphan products.

October 17-18, 2022

In person, Washington DC

More Info

International PKD Day

December 1st, 2022

More updates soon!

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