Events

Thrive’s Upcoming Events

Celebrate 60 years!

Thrive with Pyruvate Kinase Deficiency Organization is pleased to announce a PKD conference. The goal is for the community to celebrate 60 years. The conference and lodging will be free with travel assistance provided for those needing it.

60 Year Celebration of PK Deficiency as a Genetic Disease

November 6-7, 2022

Loews Royal Pacific Resort, Orlando, FL

After Conference Event: Free Universal Studio Tickets

November 8, 2022

In person/virtual

In person closed

Virtual register available

For more information contact: info@thrivewithpkd.org

Check back for more information

More Info


Thrive with Pyruvate Kinase Deficiency Facebook Group for some future virtual events online!


Other Organizations

NORD Rare Summit 2022

NORD is putting on the most impactful multi-stakeholder gathering of the rare diseases community in the country. Each year, more than 900 participants gather to share the latest updates on rare disease diagnosis, genetics and genomics, drug development, patient engagement, rare disease research, FDA oversight and market accessibility of orphan products.

Atlanta, Georgia, United States of America

October 17-18, 2022

In person, Washington DC

RARE Health Equity Summit

The RARE Health Equity Summit was developed in order to gain a better understanding of persistent gaps in diagnostic challenges for underserved/underrepresented patient communities and align next steps on how to address health inequities of the rare disease community.

November 8, 2022- November 12, 2022

International PKD Day

December 1st, 2022

pkdeficiencyday.org

More updates soon!


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