Get Involved!

Are you looking to connect with other people dealing with PK Deficiency? Here are just a few of the many ways you can get involved:

Join our Facebook Group for support and fun:

Learn more about different events in the community, including Rare Disease Day on February 22, 2022:

Grab your favorite resource and distribute it to your care team:

Contact us with your ideas and opportunities for leadership at twpkdnonprofit@gmail.com