Get Involved!

Are you looking to connect with other people dealing with PK Deficiency? Here are just a few of the many ways you can get involved:

Join our Facebook Group for support and fun:

Learn more about different events in the community, including Rare Disease Day on February 22, 2022:

Grab your favorite resource and distribute it to your care team:

Do you have a great doctor? Thrive is working to connect expert PKD providers with patients. Head to our Find a PKD-friendly Doctor friend to find out more:

Thrive has dreams for the PK Deficiency community. With your support, we will be able to fund projects that directly impact patients and families by expanding upon PKDer needs. Please contact us at if you have any questions about Thrive’s funding plans.

Contact us with your ideas and opportunities for leadership at